ECR Workshop on the European Health Data Space

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Workshop on the European Health Data Space 

From patient needs to action 

📅 Date:
15/04/2026 
🕐 Time:
13:00 - 16:00 
📍 Location:
WIE 08U107, European Parliament (Brussels) 

About the Event 


This workshop places patient perspectives at the centre of discussions on EHDS implementation. It aims to collect structured input on how data quality affects lived experience, where current systems fall short, and what conditions are necessary to build and maintain trust. Patients are not asked to assess technical infrastructures or regulatory models. Instead, they will articulate expectations, identify barriers, and clarify what meaningful and responsible data use looks like from their standpoint.

Drawing on experiences from initiatives such as AIDAVA, the discussion will explore how patient engagement can strengthen data governance and decision-making processes. The roundtable format is designed to generate concrete, patient-defined priorities for future action - particularly regarding transparency, safeguards, feedback loops, and sustained involvement.

The workshop will conclude with a clear, policy-facing call to action, consolidating patient input into key messages for EU decision-makers.


Hosted by 


Aurelijus VERYGA, Member of the European Parliament, ECR, Lithuania

Aurelijus VERYGA 

MEPMEP LithuaniaLithuania

Member of the European Parliament 

 ECR Group ECR   Lietuvos valstiečių ir žaliųjų sąjunga Lietuvos valstiečių ir žaliųjų sąjunga 
Aurelijus VERYGA

Committees

ENVIEnvironment, Public Health & Food Safety
SANTPublic Health (Subcommittee)

Delegations

D-JPDelegation for relations with Japan
D-UADelegation to the EU-Ukraine Parliamentary Association Committee
DEPADelegation to the Euronest Parliamentary Assembly

Important – This event is by invitation, and only registered participants will be admitted. Due to capacity constraints, all attendees must register, including those already holding a European Parliament access badge. Registration is mandatory for admission.

Political Group
Released on: Belgium (België / Belgique / Belgien)

European Parliament

Rue Wiertz 60 1047 BRUSSELS

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